![]() With all of the above symptoms of pain, how does someone with EDS get relief? We have found several effective treatments for pain relief, but physical therapy (PT) is the most important intervention. Fibromyalgia and Complex Regional Pain Syndrome, a type of severe localized pain, are common symptoms in patients with EDS. Participating in sports or aggressive activities can sometimes lead to a dislocation injury. People with EDS can have trouble using pens and pencils, because holding tightly to something so thin becomes painful. Any of the joints can hurt, and often more than one does. Here are the kinds of pain that someone with EDS might feel: While the specific pain can vary from person to person, we have determined some patterns. It was starting early with these patients, sometimes before adolescence, and really seemed to pick up once a person goes through the hormonal and physical changes of puberty. We listened as they told their stories and noticed that many of them were hypermobile, or “bendy.” We started to see a connection: pain was associated with EDS way more than we ever knew. Several years ago we began to notice that patients came to our Pain Clinic with a variety of different pains. In fact, I recall reading a journal article in the 1990s that said hypermobility was not a cause of pain.īut it is. Her journey with pain as a patient with Ehlers-Danlos Syndrome (EDS) is familiar to us now, but several years ago, we had not recognized just how often EDS, a hereditary cause of hypermobility, was a cause of pain. You might have seen Hallie’s edition of Tell Me a Story. Mitakides and his team are here to help.By: Kenneth Goldschneider, MD, FAAP on August 8, 2013 If your pain and joint hypermobility results in issues with your jaw, head, neck or upper back, Dr. If you have checked four or more boxes above you may have joint hypermobility, but that does not mean that you have hypermobility that affects the connective tissue throughout the body-EDS.įor individuals who checked more than four boxes and frequently experience pain or discomfort in their joints, consulting a trained and experienced medical professional should be your next step. Put your hands flat on the floor while keeping your knees straight?īend your left thumb back onto the front of your forearm?īend your right thumb back onto the front of your forearm?īend your left pinky finger at 90 degrees toward the back of your hand?īend your right pinky finger at 90 degrees toward the back of your hand? Check the box next to each motion you can do: ![]() Use the Beighton score checklist below to assess your symptoms before going to see a medical professional about your hypermobility. If your joints display signs of hypermobility, how do you determine whether it is joint hypermobility or just flexibility? For years, the most trusted way to qualify an individual’s flexibility has been the Beighton scoring system-a simple test to help you assess your hypermobility. Joint hypermobility is often hereditary, causing genetically determined changes to your collagen. Do family members, friends or even colleagues comment on the flexibility of your joints when you’re stretching or doing normal activities? Have you been called “double-jointed” on multiple occasions? While increased flexibility may be helpful to some individuals (think dancers, athletes and gymnasts), it can also be an indication of a connective-tissue condition called Ehlers-Danlos syndrome (EDS).Īccording to the Ehlers-Danlos Society, joint hypermobility, defined as more-than-normal range of movement in a joint, is either localized (increased range of movement of a single joint) or generalized.
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